Results 1 to 20 of 29
Thread: NF walk!!
-
09-02-2009, 09:44 PM #1
- Join Date
- Aug 2005
- Location
- Thornton, CO
- Posts
- 23,773
Red Tint Jewelcoat- 2008 Trailblazer SS
NF walk!!
http://www.ctf.org/How-You-Can-Help/walk-program.html
Some of you know, my daughter has NF (neurofibromatosis). She has a pretty severe case.
Anyways, there is an organization out there helping to raise funds for support, research, and awareness about NF.
In the link above, there are a few different walk locations, and several informational links if you are interested. Just people out at the walks raising awareness is huge!!!
I am not 100% sure I can make the Denver walk next month, but I am going to try.
There is also a fundraising page that my mom set-up (she beat me too it) for Sara if anyone is interested.
http://www.active.com/donate/COwalk/MVoss16
Also, Sara is doing GREAT!! Since her last surgery 3 months ago, she is been a whole different kid. Still not walking, but she does stand up using something to brace herself with. She will say "Stand Up" and get on her hands and feet (while bent over), so she wants to get there.
-
09-03-2009, 04:59 AM #2
bump!
glad to hear this about Sara!
-
09-03-2009, 05:00 AM #3
- Join Date
- Jan 2006
- Location
- Shepherd, Michigan
- Age
- 36
- Posts
- 11,770
blacker than wesleysnipes- 98' trans am
hi sara
-
09-03-2009, 10:32 AM #4
Bump
┌∩┐(◕_◕)┌∩┐
Man: The Mods you are fighting,
they are the biggest Men I have ever seen. I
wouldn't want to fight them!
Me: That is why no one will remember your name!
-
09-03-2009, 10:34 AM #5
i swear curtis. you have the cutest little girl i have EVER seen!
she is blessed to have an awesome daddy like you!!
-
09-03-2009, 11:01 AM #6
Nothing remotely close to me
But I bookmarked the link in case one comes up.
-
09-03-2009, 03:23 PM #7
- Join Date
- Aug 2005
- Location
- Thornton, CO
- Posts
- 23,773
Red Tint Jewelcoat- 2008 Trailblazer SS
Thanks everyone!!
She is great. Wish I had her more, but that will come with time.
-
09-03-2009, 07:23 PM #8
Bump for Sara
-
09-03-2009, 08:21 PM #9
Bump for awareness of a crappy disease
-
09-04-2009, 03:37 PM #10
Bump because this thread is actually important vs 99.9% of AAG
-
09-04-2009, 03:45 PM #11
-
09-04-2009, 08:13 PM #12
-
09-04-2009, 09:44 PM #13
She's getting soooo big, Curtis, and, looks adorable. I'm glad to hear she is doing so well
-
09-05-2009, 05:06 AM #14
I hope for all the best for you and Sara, Curtis. I know you will stay strong for her and if you feel you need to talk to someone...we are here for you.
-
09-05-2009, 06:19 AM #15
Best wishes to your daughter and family Curtis. Donation submitted.
-
09-05-2009, 07:13 AM #16
- Join Date
- Aug 2005
- Location
- Thornton, CO
- Posts
- 23,773
Red Tint Jewelcoat- 2008 Trailblazer SS
Thank you all very much!!
Thoughts and prayers (just being aware) are just as good as any donation!
Thank you to those that have given either.
-
09-05-2009, 08:32 AM #17
- Join Date
- Nov 1999
- Location
- over here...
- Age
- 45
- Posts
- 25,709
[]D [] []V[] []D- 1999 trans am
go sara!!!
-
09-05-2009, 01:11 PM #18
- Join Date
- Feb 2006
- Location
- Seattle..Land of Constant Rain..
- Posts
- 1,425
Red Fire- 2007 Mustang GT/CS
Damn dude, That's Great news...
For some reason I saw the title and was thinking Football... Don't ask.. I don't know.
I just read the post and am So Very happy for her and you !!
And wow !! Is she ever a cutie !! Such a doll ..
I will include her in my prayers.
-
09-05-2009, 05:56 PM #19
Bump til this gets 500 views. Important people, important.
-
09-06-2009, 03:13 AM #20
Sara looks good Mr. Luos, glad she is doing better. She is a very very cute little girl and is a tough cookie. Bump so this important thread is seen by everyone. If there was something closer to me I would be there. Sucks that even if one was, my damn work schedule sucks balls. I'm a
Thread Information
Users Browsing this Thread
There are currently 1 users browsing this thread. (0 members and 1 guests)
Similar Threads
-
idle/walk around video of my new WS6
By devildogws6 in forum Multimedia SectionReplies: 6Last Post: 11-24-2012, 10:33 AM -
I talk the talk but I have PROOF that I walk the walk!
By blackSS01 in forum Almost Anything GoesReplies: 61Last Post: 04-24-2012, 01:31 AM -
would you walk out on this?
By Trouble maker in forum Almost Anything GoesReplies: 16Last Post: 03-10-2007, 11:21 AM -
Pics - Took the dog for a walk
By 98MustGT in forum Almost Anything GoesReplies: 10Last Post: 03-05-2007, 03:15 PM
Bookmarks