NF walk!!

**Mr. Luos** · 09-02-2009, 09:44 PM

http://www.ctf.org/How-You-Can-Help/walk-program.html

Some of you know, my daughter has NF (neurofibromatosis). She has a pretty severe case.
Anyways, there is an organization out there helping to raise funds for support, research, and awareness about NF.

In the link above, there are a few different walk locations, and several informational links if you are interested. Just people out at the walks raising awareness is huge!!!

I am not 100% sure I can make the Denver walk next month, but I am going to try.
There is also a fundraising page that my mom set-up (she beat me too it) for Sara if anyone is interested.
http://www.active.com/donate/COwalk/MVoss16

Also, Sara is doing GREAT!! Since her last surgery 3 months ago, she is been a whole different kid. Still not walking, but she does stand up using something to brace herself with. She will say "Stand Up" and get on her hands and feet (while bent over), so she wants to get there.

**ss~zoso~ss** · 09-03-2009, 04:59 AM

bump!

glad to hear this about Sara!

**shady milkman** · 09-03-2009, 05:00 AM

hi sara

**blackSS01** · 09-03-2009, 10:32 AM

Bump

**toi tyme** · 09-03-2009, 10:34 AM

i swear curtis. you have the cutest little girl i have EVER seen!

she is blessed to have an awesome daddy like you!!

**86 IROC-Z** · 09-03-2009, 11:01 AM

Nothing remotely close to me

But I bookmarked the link in case one comes up.

**Mr. Luos** · 09-03-2009, 03:23 PM

Thanks everyone!!

She is great. Wish I had her more, but that will come with time.

**blackSS01** · 09-03-2009, 07:23 PM

Bump for Sara

**blackSS01** · 09-03-2009, 08:21 PM

Bump for awareness of a crappy disease

**blackSS01** · 09-04-2009, 03:37 PM

Bump because this thread is actually important vs 99.9% of AAG

**86 IROC-Z** · 09-04-2009, 03:45 PM

Originally Posted by blackSS01

Bump because this thread is actually important vs 99.9% of AAG

This.

**blackSS01** · 09-04-2009, 08:13 PM

Originally Posted by 86 IROC-Z

This.

**KahanaReef** · 09-04-2009, 09:44 PM

She's getting soooo big, Curtis, and, looks adorable. I'm glad to hear she is doing so well

**Mieux97** · 09-05-2009, 05:06 AM

I hope for all the best for you and Sara, Curtis. I know you will stay strong for her and if you feel you need to talk to someone...we are here for you.

**pajeff02** · 09-05-2009, 06:19 AM

Best wishes to your daughter and family Curtis. Donation submitted.

**Mr. Luos** · 09-05-2009, 07:13 AM

Thank you all very much!!

Thoughts and prayers (just being aware) are just as good as any donation!
Thank you to those that have given either.

**Spaz** · 09-05-2009, 08:32 AM

go sara!!!

**Crimson Sin** · 09-05-2009, 01:11 PM

Damn dude, That's Great news...
For some reason I saw the title and was thinking Football... Don't ask.. I don't know.
I just read the post and am So Very happy for her and you !!
And wow !! Is she ever a cutie !! Such a doll ..
I will include her in my prayers.

**blackSS01** · 09-05-2009, 05:56 PM

Bump til this gets 500 views. Important people, important.

**blackSS01** · 09-06-2009, 03:13 AM

Sara looks good Mr. Luos, glad she is doing better. She is a very very cute little girl and is a tough cookie. Bump so this important thread is seen by everyone. If there was something closer to me I would be there. Sucks that even if one was, my damn work schedule sucks balls. I'm a